This week we made a public service announcement!
The DePaul students came to the office and helped me work on a sixty second spot about how to make more people aware of Dyspraxia and how to get support for our organization. It was challenging because I had to try not to repeat things or say words in the wrong order. I was also worried about forgetting what I meant to say. We decided to write a script, and managed to come up with a great one in about an hour. The announcement is now on CD and will be sent to radio stations all over the country!
I also continued calling parent led Special Educational Support systems in the United States. Some were sorry they could not help and others really wanted to get involved. I spoke with the New Jersey chapter of SPAN (Statewide Parent Advocacy Network) and they told me they would link to our website! This helps make our website available to parents in other states. The director also gave me suggestions of ways to help our organization. I was so pleased.
I received a reply yesterday to a voice message I left for the CanChild Centre for Disability Research in Canada. The director told me she was so excited that there is now a Dyspraxia organization in the United States. She set up a meeting with me by telephone and has offered to help us network with international medical specialists who are knowledgeable about Dyspraxia. Medical support from around the world will help make Dyspraxia USA be taken seriously. I am getting very excited! I know things will take time, but people are speaking to me and taking the message to heart. It is time to make Dyspraxia a national issue in the United States!
4 comments:
Hi, My son Matt is 10 years old and has dyspraxia. He has an IEP and attends public school. His educators do not understand his condition. I need help. I want him to have every opportunity available to him. ???!!!Melissa
Thanks for your work! Keep it up!
My son has been diagnosed with dyspraxia since 3 years of age. He has worked hard via Speech, OT and Visial therapy to make great strides in his development however he still faces daily challenges. To those who have just received the diagnoses I say 'don't give up!'. Every parent must take it upon themselves to actively find the right suport for their child. There are many who don't understand this disorder and I have seen it constantly confused with Autisim.
Is there any way to obtain the service announcement you mention so that I might help share it with as many people as possible?
Joey
Hello
Hi there,
I have a son, Anthony, who is 21 later this month and who was diagnosed with Dyspraxia when he was 4.
I have decided to put all the major expriences and "epiphanies" into a Blog.
http://DealingwithDyspraxia.blogspot.com
I'm keen to find out if other parents would be interested in stories of hope .. and what to prepare for,
So I'd appreciate it if you would publish this letter on your website and see if you can reach people who might be interested in learning lessons from my family's "on-going" story.
Many thanks
Des
London UK
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